That's my current diagnosis after my first appointment with my new rheumatologist. Auto Immune/Connective Tissue Disease/Mild Lupus. This doesn't rule out full-on lupus, it is just all the can be diagnosed in a single visit based on symptoms and past labs. For now though, that is where it stands. I had lots of blood work and testing done, like always. I go back in one month for follow up tests so my Doc can start monitoring for damage to any organs or systems. That's the only way to nail down calling it full blown Lupus. If there isn't significant damage at this time, it still may be progressing that direction, so it is a scary and uncertain road. The comfort comes in knowing that I'm going to be watched closely, be treated proactively, and that if and when things go downhill, it will be caught quickly. I feel confident in my new Doc, and in the care of this practice, and for that, I'm so fortunate.
My overall health, of course, comes first and foremost. I'm so thankful to feel like I'm in good hands with that. However, I will admit that I left in happy tears at how he will be addressing my concerns of how this has impacted my struggles with IF and RPL. His outlook on it was that - if there are treatments that won't hurt, and have a good chance of helping, why would we not pull out all the stops after all I've been through? And that is an approach I've been hoping to find in a Dr. for the last 15ish months since I found out about the auto immune issues. It's getting longer between each pregnancy, with each pregnancy being shorter than the one before. It's been almost a year since my last BFP, and that only lasted a few day - even though my treatments have been stronger, and more involved since then. I've had significant symptom flare ups in that time as well. I have to believe they are connected. If there are things that I can do or take that might be game changing, bring it on.
So, it's P.laquenil starting immediately to combat my symptoms and flare ups. That will help me feel better, but also may help lend success to upcoming IF treatments. If I get pregnant again, I'll add in P.rednisone steroid treatment, as well as injection blood thinners, likely L.ovenox. He may also add progesterone shots, since I have low numbers in the department. That's the plan, and it is one I feel great about. I still have to *get* to the part where it comes into play though. That whole pesky actually getting pregnant thing that I'm not too good at? That's my big obstacle now. I can only hope that my new RE that I start with next week will be as understanding and proactive. Oh, and that they will work with Soldier's training and deployment schedule, which will cause some complications.
It is a lot to process. This is a journey I only recently decided to revisit, and it is a little tough to get my head in the right place with it. But, I can honestly say that I'm glad we reopened this door. Knowing that everything that can be done, will be done - that's huge. And if it doesn't work, it doesn't work. At least I'll know I took this ride as far as it could go, and won't regret, or wonder 'what if' down the line.
Showing posts with label recurrent pregnancy loss. Show all posts
Showing posts with label recurrent pregnancy loss. Show all posts
Thursday, January 26, 2012
Wednesday, August 10, 2011
Exciting New Plans.
Big decisions have been made in the H household. July was another failed cycle for us. All the results from my re-drawn tests came back, also. My ANA titer is higher than previous draws. With +ANA, anything with a ratio of 1:40 or higher is considered positive. Mine has been a steady 1:320 since last October, and now is 1:640. It's not unusual for it to fluctuate, but because I am negative for any specific auto-immune diseases, it is a bit odd. I am being referred to a second rheumatologist, this time within the same hospital my RE practices out of.
I am going ahead with this cycle. It will be our last try with the Femara 7.5 mg before moving on to a different course of meds. Since my new rheumatologist will be in the same practice as my RE, hopefully they can get me on an additional medicine for my immune issues that could possibly help have a different outcome. We move in about 10 weeks or so, which gives us this cycle, and one, maybe 2, more chances before we head to a new duty station.
Which leads me to previously mentioned exciting new plans. When we get to our next station, we will be pursuing foster-to-adopt! Soldier and I are both quite excited about this decision, and we are confident that this is the right choice for us. We will continue to attempt TTC while we are still here in TX, but regardless of the outcome, the adoption is something that is in our near future.
People have said to us in the past, "why don't you just adopt?" and I just want to make it very clear, that "just" and "adopt" do not belong in the same sentence. It is not a simple or easy thing to do, and it's not just some default backup plan in the game of having difficultly having biological children. It is not a "plan B" nor is it something that people have to settle for when they can't have children in the way that most people consider "normal." This is a huge decision, one we are thrilled at the prospect of, and these children will be ever bit as loved and wanted as ones that are biologically ours.
We had been hesitant to pursue this road before now. We looked into the process during Solider's deployment, but with knowing about our upcoming move, there wasn't enough time to commit to the process before we would be leaving. Knowing that we will be in TN for quite some time, and that we will be buying a home, allows us to fully invest in this journey, and we can't wait!
Ideally, we would like to take in a sibling set, preferably a brother and sister. We are hoping for them both to be under 3 or so years old, and will only be taking in children that are legally free for adoption. After all these losses, we just can't bare to have other kids taken away from us. This will be a difficult and long road for us. It's a complicated process, and there will be heartache. We simply don't have the money for private adoption, and in choosing this road, we can help kids who would otherwise grow up in the foster care system. Sibling sets are hard to place, because so many want to adopt one at a time, and typically people want infants. To know what kind of difference we can make to 2 children who need a home... it just makes our hearts happy and hopeful for the first time in many years about having a family. I can't wait to get to our new home, settle in, and have the family we've always dreamed of. It might be done unconventionally, but hey, we have never been much of a normal couple anyhow. :)
I am going ahead with this cycle. It will be our last try with the Femara 7.5 mg before moving on to a different course of meds. Since my new rheumatologist will be in the same practice as my RE, hopefully they can get me on an additional medicine for my immune issues that could possibly help have a different outcome. We move in about 10 weeks or so, which gives us this cycle, and one, maybe 2, more chances before we head to a new duty station.
Which leads me to previously mentioned exciting new plans. When we get to our next station, we will be pursuing foster-to-adopt! Soldier and I are both quite excited about this decision, and we are confident that this is the right choice for us. We will continue to attempt TTC while we are still here in TX, but regardless of the outcome, the adoption is something that is in our near future.
People have said to us in the past, "why don't you just adopt?" and I just want to make it very clear, that "just" and "adopt" do not belong in the same sentence. It is not a simple or easy thing to do, and it's not just some default backup plan in the game of having difficultly having biological children. It is not a "plan B" nor is it something that people have to settle for when they can't have children in the way that most people consider "normal." This is a huge decision, one we are thrilled at the prospect of, and these children will be ever bit as loved and wanted as ones that are biologically ours.
We had been hesitant to pursue this road before now. We looked into the process during Solider's deployment, but with knowing about our upcoming move, there wasn't enough time to commit to the process before we would be leaving. Knowing that we will be in TN for quite some time, and that we will be buying a home, allows us to fully invest in this journey, and we can't wait!
Ideally, we would like to take in a sibling set, preferably a brother and sister. We are hoping for them both to be under 3 or so years old, and will only be taking in children that are legally free for adoption. After all these losses, we just can't bare to have other kids taken away from us. This will be a difficult and long road for us. It's a complicated process, and there will be heartache. We simply don't have the money for private adoption, and in choosing this road, we can help kids who would otherwise grow up in the foster care system. Sibling sets are hard to place, because so many want to adopt one at a time, and typically people want infants. To know what kind of difference we can make to 2 children who need a home... it just makes our hearts happy and hopeful for the first time in many years about having a family. I can't wait to get to our new home, settle in, and have the family we've always dreamed of. It might be done unconventionally, but hey, we have never been much of a normal couple anyhow. :)
